Wednesday, June 19, 2013

It's My Birthday!

So I have an update: I am still eating corn and it is going decent. My next trial is a special bread. Not sure what it is called. I have to see if I like the taste. If I don't like it I don't know what I will try and eat next. There isn't anything that I want to trial. On Tuesday, we went to the dollar theater in the morning with friends. In the afternoon we had dentist appointments for all four of us kids. Let me tell you I like our dentist. They care about us a lot. Since Tyler and I have allergies we aren't allowed to have the normal stuff that the other kids get. Last time they were safe but this time the ingredients changed and now they contain a milk protein  So Tyler and I couldn't use the fluoride. Before we even got started they made sure it was safe for us to get our teeth cleaned. Obviously it wasn't but we got our teeth cleaned without the fluoride. Tyler also has to bring his tooth paste to the dentist because he cannot do the tooth paste they use. I however can. After the dentist we signed up for soccer. I was wearing my eosinophil shirt with all the pronunciation. That no one who is normal can seem to read. She stared at me like an alien and then was like "I don't get it" So I told her what it meant and she was like gotcha. She thought I was a big science nerd instead of it being a disease. I wish I was a science nerd instead of having a disease I think it would be more fun! Anyway today is Wednesday and it is my birthday! I woke up and got allergy shots. First you have to tell them your birthday the first lady never caught on that today was my birthday but the second lady did. She was like well happy birthday. The doctor just laughed. Like it was funny because I was getting allergy shots on my birthday. the nurse continued on the conversation and said I am sorry you have to get shots on your birthday. Then she said Bless your heart and I walked off because I was done. I made myself a birthday cake made of Dum Dum lollipops, Dum Dum Candy Canes, and smarties. The base was an empty Kleenex box. Mom called the pulmonologist because I need to get back to seeing one because we can't get my asthma controlled with the allergist. She called to see a new doctor because our old one left and they told us we could either pick an appointment for Thursday or not until September. So of course we pick the appointment for tomorrow! I'll get PFTs done and hopefully we will be able to discuss my lung issues and find a new situation to address the issue. I also have an orthodontist appointment in the afternoon. We are packing for the beach we leave on Friday. Tyler's dry suit came in so he will be able to go in the water and swim like a normal kid because of his central line he is not able to get his line wet. We will be gone until Monday I believe. Then we have a week free of appointments besides Tyler's therapies.

On another note I want to let everyone know that this year I wasn't able to have cake or ice cream or any other special treat for my birthday. I want everyone to realize that there are people out their who can't take a bite of their cake. We have to be extremely creative and find a new idea for us to be able to enjoy a treat but it doesn't compare to what others get to eat for their parties. At my party in July we won't be eating food. I'm just going to have a few friends over to swim. I'll ask mom to make snowcones but that will be it. Unless I still have corn then. Maybe, we will add some popcorn to the mix.  I am okay with nothing as long as I have friends around just to hang out and pretend like it's a nomral summer day and not a birthday party.

Hope you guys enjoy your day as much as I did. I got neon pink converse for my birthday.

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