Here's some facts:
- Mitochondrial Disease never presents itself the same way. Even two siblings both who have the disease can have entirely different symptoms in how the disease presents itself.
- Mitochondrial Disease is just as common as childhood cancer, yet the in the case of mito, there isn't a treatment protocol, no cure rate, only a handful of specialists, and very little awareness.
- There is no reliable or consistent means of diagnosis.
- Mitochondrial Disease is an inherited chronic illness that can be presented at birth or a patient may develop later on in life. Anyone at an age and develop the disease.
- Every 30 minutes, a child is born who will develop Mitochondrial Disease by the age of 10.
- The NIH (National Institute of Health) only devotes $11 million dollars to Mitochondrial Disease research a year.
- Mitochondrial Disfunction is linked to Type 2 Diabetes, Alzheimer's, ALS, and Parkinson's Disease.
- Mitochondria produce 90% of the energy your body needs to function.
Last year during awareness week I wrote this and it still rings true today:
During Mitochondrial Disease Awareness Week and every week during the year wear green, tell some facts, share a ribbon, and raise awareness. I don't have an escape. This is my reality 24/7. While you might be able to turn the other cheek and pretend the disease doesn't exist my family and thousands of other families will never be able to do the same.
"Some say I'm crazy and obsessed. I call it making a difference. I know what I am doing is right and that's all that matters. You can either support me or choose to look the other way. It's your choice. Either way I won't stop making a difference in this world."