Back To Reality

It's was a great weekend and I was sad to see it to come to an end and we have to go back to reality but everyone does eventually. Friday we drove 6 hours to Kentucky for the retreat weekend at The Center for Courageous Kids. Friday night was introductions, games, and some dinner. The games were really fun and we found some of the people we knew and hung out with them. Saturday we woke up bright and early and did the early morning activity before breakfast  After breakfast, I went swimming while everyone else wanted to go fishing. Kiley caught a huge fish and while I played volleyball with a new friend. Lunch came around and the guy in charge made some noodles for me that I had brought from home so I could eat! During lunch, I also met a boy named Tyler who is my age and has a feeding tube. He was shy but it was still cool to actually meet someone else like me. Soon we did some arts and crafts for the rest of the afternoon. At dinner, they had a snow cone machine with safe flavoring!!!! YAY! It tasted amazing. We had a dance party while the parents went to the bowling alley and talked. I danced with Kendyn and Amelia. Tyler was way too tired and just sat down and watched everyone. Kendyn is an amazing dancer!!! He was so funny to watch. Sunday was the last day and we got to sleep in. I think everyone was a little thrown off by the time change and we got to brunch a little late but oh well. We also went to the camp store to buy t-shirts. I got a shirt that said CCK STRONG. It looks really cool! After that, we went horseback riding. That was cool. There was a boy in a wheelchair and he was even able to ride the horse. I thought that was amazing. Only at this camp would this child would ever be able to ride a horse! We signed the banner and picked up our crafts and it was closing. We took pictures and it was sad to leave. Another six-hour car ride and we are home. Tyler is extremely tired and isn't feeling the greatest. We still aren't really sure about bread. Mom told me to pull it for a while until I feel better and try again. Now it is time to sleep for the next few days! I am exhausted! I hope everyone else is doing good!

Twas The Day Before Surgery...

Twas The Day Before Surgery! How exciting? We have to be at the hospital at 6am! :( So we are leaving the house at 5:15!! So I will be waking up early for an 8am surgery. I went to church this morning and had a great time. Confirmation went well too. Then we went to Rachel's apartment for food!! I am finally able to eat an average meal. Well...as average as plain macaroni noodles can get. NO PAIN AGAIN!!! :D Tomorrow will be the last day with this food trail and I'm really gonna consider it a pass already!!! Anyway, we ate lunch there and left for ice skating. I am a good ice skater if I do say so myself. I skated around with Aksel for the whole time until I got trucked by some old guy! OUCH!! That hurt and I am so glad I decided to disconnect from my tube feeds right before or that tube would have been ripped right out of me! That would have been bad! Then I took it easy for the rest of the time. I went home ate some more noodles. Skype with the most awesome person ever! Christine!! My microphone isn't working so we had an interesting time trying to figure it all out.  Now to finish up feeds for the night and then I am NPO after midnight. I may end up staying up all night since I never get to bed till 3am anyway? Last day with the PEG tube and I am glad to see it go. I hate how the PEG sticks out and all that it is annoying. So glad to get the AMT mini button. A pretty awesome day before surgery if you ask me. I hope it doesn't hurt too bad when I wake up. It shouldn't but you never know. I will be posting about my crazy complex life on this thing you call a blog. :) I hope you enjoy!