Tuesday, February 10, 2015

Teens with Feeding Tubes

Today is Day 3 of #FeedingTubeAwareness Week! Today we discuss myths and misconceptions when it comes to feeding tubes.

  • The most common misconception at my age is: "Teenagers can't have feeding tubes. That's only for babies or the elderly."

A few weeks ago a thread I had commented on into discussing the reasons why some may have feeding tubes, someone told me they weren't aware teenagers could have feeding tubes because those things are only for babies or old people. This was a mother who was fairly new to tube feeding as her child was only four months old. However I am all too aware that that statement is FALSE!

For the past three years I have put together a video for Feeding Tube Awareness Week that shows all the teens who walk a similar journey as me. Every single one person in those videos have feeding tubes. They are all either teenagers or young adults. Here's a list of some reasons why teenagers may have feeding tubes: Mitochondrial Disease, Eosinophilic Disorders, Crohn's Disease, Gastroparesis/Digestive Tract Paralysis. (For this years link click here)

Some of us have had our feeding tube since we were babies but there are many of us who didn't wind up on this path until the last few years. Disease can strike at any age. I know most teenagers like to think we are invincible and nothing bad can ever happen to us like being sick because in our society most people don't get sick until they have had a good long life. That is a great thing and that's how it should be! However, there are those of us who don't fit that common criteria. While I am sure all of us would love to be able to say feeding tubes are surely not a thing for teenagers the truth is they are. Feeding tubes are for anyone who is in need of nutritional support.

I had my first feeding tube placed on November 16th, 2012. At that point in my life it was my very first year of high school and I was miserable trying to battle with the pain that came with eating. I did not have a true diagnosis but we wanted to give an elimination diet a try. First I had started with drinking the formula and that was not an option which was where the feeding tube came to play.
Within two weeks I was feeling so much better! I had loads of energy and the best thing of all was my pain was gone! I didn't have to worry about making sure I was eating enough and the pain that would come after that. My feeding tube gave me my life back. I was able to go do all those normal teenager things thanks to my feeding tube! I played soccer, went swimming, spent nights out with friends, going to Homecoming and many many more fun filled experiences any normal teenager should have. My feeding tubes have never stopped me form being able to live my life. They have only helped me thrive and for that I am very very thankful!

Summer Parties

Homecoming 2014

You see you never know when disease may strike! It won't spare you just because "You think you are too young to be sick." or because "Only babies and old people can need feeding tubes. That can't happen to teenagers." The truth is yes it can and will. There is no discrimination when it comes to feeding tubes and being sick! I have made friends from Australia, Canada, Alaska, London, New Zealand, and many other places in the world who are in the same boat I am. When you look through the teens with feeding tubes video you see faces of teenagers and young adults from all over the world. We are forgotten or not even thought about because teenagers aren't supposed to be sick but it does happen. We are just as susceptible to chronic illnesses as babies and adults! Feeding tubes have helped me and many other teenagers thrive and I know we are all very thankful they exist because without them many of us would have never made it through our teenage years.

Saturday, February 7, 2015


I once heard this quote from Spiderman that says “It’s easy to feel hopeful on a beautiful day like today, but there will be dark days ahead of us too, and there will be days where you feel all alone, and that’s when hope is needed the most, no matter how buried it gets, or how lost you feel, you must promise me, that you will hold on to hope. Keep it alive, we have to be greater than what we suffer. My wish for you, is to become hope, people need that, and even if we fail, what better way is there to live.”

In life I see this quote a lot; like how today is a good day and I am ready for whatever life throws at me. But there are also many bad days when I just can’t take all the pain anymore but I know God is far greater than my problems! Romans 15:13 shows us just that.  “May God, the source of hope, fill you with joy and peace through your faith in Him. Then you will overflow with hope by the power of the Holy Spirit.” So for now we need to hold onto God because He is our one and only true hope.

Hope is important when it comes to Christianity, as it goes hand in hand with faith.  When we have hope we believe things will work out for the better. It means we hold on because we know better days are coming! One bad day is only one bad day. Its 24 hours, 1,440 minutes, and 86,400 seconds. However, sometimes when these bad days come we don’t think there’s much hope and all we want is the answer to the question, “Is there hope?” The answer is yes there is hope.  Humans can’t live without hope. Hope is the driving force that keeps us going. It’s just as important as food and water. Albus Dumbledore once told me “There is always hope in the darkest of times if one remembers to turn on the light.” Hope might be tricky to find, sometimes it’s as quiet as a whisper but other times it rings as loud as church bells. No matter how quiet or loud hope is it’s always there just like how God is always there for us.