I become exhausted very easy as many know I often don't have the energy to keep up with my friends daily. Three flights of stairs is hard! Last week I was given the option to use the elevator except I am stubborn and I just did not want to do that! Well today I really should have. I only went half a day and I am just dead! My back hurts, my joints hurt, my knees hurt, my bones hurt, and well my entire body hurts! I haven't struggled with physical limitations much until this pass year. As my health declined so has my energy level. I used to be sleeping constantly! Now I thankfully am able to sleep less and function more but my energy is not doing well either. Yes I still push myself and try and function but it is hard at times. I want to keep going and do what I can because I don't want to let my body just go to waste I want to keep the muscles I have working! So tomorrow I probably will try the elevator because my body just isn't liking me so much!
My surgeon wasn't pleased with how my incision is healing and personally I wasn't either! He ended up cutting me again so this time I will hopefully heal properly. We go back in two weeks for him to check me out again(along with Tyler) At that point we should hopefully schedule my PEJ change so I can get a button! I was supposed to originally get a button but they didn't have my size in stock at the time of surgery. I was NOT happy when I woke up. He didn't want to place the tube while I was awake over in just the clinic and he wants it done at the main hospital in the OR so it looks like we will possibly be having a surgery planned eventually! It won't be anything major just a tube swap!
PS: I am doing feeds!! They are running anywhere between 20-25ccs an hour for 20ish hours a day sometimes less but no less than 16 hours a day! It's progress! So happy to be able to run feeds and I hope I am able to stay running them and even get up to a faster rate eventually!