I am your not so average 22 year old battling Mitochondrial Disease, Gastroparesis, POTS, Epilepsy, MCAS, brain injury, and several other chronic illnesses. These are my thoughts on what it's like to be a young adult fighting several life-limiting diseases.
Thursday, June 19, 2014
16?
I don't wanna get a little soap opera on everybody but this year has honestly been the hardest in a long time! Ever since last August I have had the hardest time when managing my health. As the months have gone by I am thankfully becoming more stable and more manageable. I am still on TPN, still not able to eat, I have a massive migraine always, and of course I am still sick and dependent upon many medications. My health went down hill fast this past year. I've realized that life is really hard but I can keep fighting just as long as I have all the strength and courage. I am hoping that over the next year I keep getting better and I keep fighting. This past year has been hell and I am ready to leave it all behind. I want off TPN and yes it is going to take a lot of work to get there however I'm ready for that challenge. I understand that I may not be able to come off tpn but I want to try. I want to be able to at least say I tried because that's all that matters! Anyway yeah it's my birthday! :) I am turing 16 and I got exactly what I wanted a brand new Nikon camera. I will be spending the day at home with my family. We are also preparing for my brother's 13 birthday! I'm terrified that he's turn 13 tomorrow! Yes we were born 3 years and one day apart. I'm kinda thankful we weren't born on the same day! Not that I don't like him or anything but...you get my point.
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